Following discussions with the Department of Health, the Healthcare Quality Improvement Partnership (HQIP) has begun compiling a catalogue of all disease and procedure registers, case registers and clinical databases, covering both conditions and procedures for England and Wales. The central purpose of this work is to assist clinical practice through communication of the existence of these projects as widely as possible – but the output will also lend itself to research purposes.
HQIP will develop the database and make it available as a free and fully searchable, online resource.
The project is still at an early stage and is seeking stakeholder involvement to ensure that HQIP design and build a database that is fit for purpose and is seeking feedback on: what stakeholders see as the value and essential purpose of a Register of Registers; the level of content asset owners might feel comfortable supplying; the type of information potential users of the online directory would seek to access; and how best to ensure the database, once live, remains current and regularly updated.
HQIP was established in April 2008 to promote quality in healthcare, and in particular to increase the impact that clinical audit has on healthcare quality in England and Wales. The organisation has since branched out into other areas of quality improvement but retains a focus on quality improvement based on clinical data - registers and clinical databases – which can play a crucial role in a range of activities including epidemiological and biomedical research.
For more on catalogues of clinical datasets see the NCRI Informatics Spring Newsletter