It was great to see Monica Jones,
recently appointed Informatics Lead at Cancer Research UK (CRUK), who spoke
about the potential to scale the CRUK Stratified Medicine Initiative up to national
level and on their “connect all” rather than “replace all” strategy which will
focus on the use of standards and facilitation of interoperability. Monica
flagged up a forthcoming CRUK informatics ‘connectathon’ which sounds really
interesting.
The abstract for Monica’s talk is
below:
“The CR-UK Stratified Medicine
Programme will ultimately deliver a multi-site system for the access and
analysis of routinely collected cancer clinical and genetic data. Phase one
which has just started, will capture and store the appropriate data from 9,000
cancer patients consented in the next two years. It seeks to utilise existing Experimental
Cancer Medicine Centres (ECMCs) data capture capability and XML messaging for
rapid molecular diagnostic data transfer between hospitals and labs. It will
also will extract and link datasets (to the NHS National Data Standards) in a
central repository provided through a partnership with the Eastern Cancer
Registry which is fully compliant with NHS Information Governance regulations.
In parallel, the Technology Strategy Board (TSB) is funding the development
innovative analytical applications that will complement this, thus providing an
overall strategic direction.”
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