It was great to see Monica Jones, recently appointed Informatics Lead at Cancer Research UK (CRUK), who spoke about the potential to scale the CRUK Stratified Medicine Initiative up to national level and on their “connect all” rather than “replace all” strategy which will focus on the use of standards and facilitation of interoperability. Monica flagged up a forthcoming CRUK informatics ‘connectathon’ which sounds really interesting.
The abstract for Monica’s talk is below:
“The CR-UK Stratified Medicine Programme will ultimately deliver a multi-site system for the access and analysis of routinely collected cancer clinical and genetic data. Phase one which has just started, will capture and store the appropriate data from 9,000 cancer patients consented in the next two years. It seeks to utilise existing Experimental Cancer Medicine Centres (ECMCs) data capture capability and XML messaging for rapid molecular diagnostic data transfer between hospitals and labs. It will also will extract and link datasets (to the NHS National Data Standards) in a central repository provided through a partnership with the Eastern Cancer Registry which is fully compliant with NHS Information Governance regulations. In parallel, the Technology Strategy Board (TSB) is funding the development innovative analytical applications that will complement this, thus providing an overall strategic direction.”